Wednesday, August 06, 2014

Miracle League

We were out of town when Nate had team photos I had to take pics of him in uniform and email them to the staff.  Here are a few out-takes for your viewing pleasure :)

Tuesday, March 11, 2014

What about Nate

Last week I had an interesting email correspondence with Hannah's Bio teacher. The topic in class was chromosome and karyotype analysis, and the subject of Down syndrome was discussed. A student asked if Down syndrome was preventable, and the teacher replied, "no, it's just bad luck."

weeeeeeeell now.....let's suffice it to say that didn't go over well.  I had a bit of a come-to-Jesus with her, in a nice way (ish) ...all is well.  I told her in the end that I'd be happy to bring Nate to her class so her students could meet him and ask me all the questions they wanted to.  It would be my pleasure actually...nothing would make me happier than to set the record straight with that teacher and to watch Nate charm his way into every heart at Bayport.

But that got me thinking. Day dreaming actually about what I would say to a class full of teenagers who may or may not have any experience with a kid who has Ds.  A hundred different thoughts went racing through my mind, all piling up on top of each other vying for my attention. I tried to organize them in  a steady stream of what I know to be true, starting with who he is....

This is my son, Nate. He's six years old. He loves playing games on his ipad and eating pizza. In fact pizza is probably his favorite food, except for burgers. I've tried reading him a few different books at night before bed, and he didn't like any of them, until I found Little House on the Prairie.  He learned sign language at around 8 months old, and even though he doesn't need it anymore, sometimes he still uses it, for in "pleeeease, momma...a cookie?" There have been more than one occasion that he has called me "cray" with a crooked grin. Potty training can be tedious, but he is very sensitive to it. I have to be careful not to show frustration because he'll say he's sorry, even though he hasn't done anything wrong.  The dogs finally listen to him which makes him giggle every time.  He loves to cuddle, especially in our bed. And watch movies. He loves movies. The first time I took him to a 3D movie I thought he'd come out of his skin! He's grumpy sometimes when I wake him up to go to school, but he gets to swim twice a week at Syble Hopp, which he loves.  He talks about his church a lot, and asks every week if it's "Able Friday." He is the darling of Camp Daniel. He is affectionate, tender, hilarious, brave, sensitive, charismatic, loyal and smart. He's totally adorable, too.  :)  He tells me he loves me at least a half dozen times a day, and usually it is when I am helping him, which is all the more endearing.  He plays baseball in the Miracle League. He loves Mickey Mouse and Curious George. And his big brother. Whenever his dad plays the piano, he gets out his drum and plays along. He reminds us to pray before meals, and requires us to hold hands around the table, even though we have not historically ever held hands during prayer. (he also will look around the table while he's praying to make sure everyone's eyes are closed lol). He loves yogurt, especially sitting on the counter eating it while I cook. He notices if I get a haircut, likes hot tubs, loves his sisters and is a great traveler. Whenever the front door opens, he'll often say, "Becky's home!" He's tired of getting his photo taken, complains about taking medicine and will pretend he hasn't heard me say it's time to turn off Spy vs. Spy.

These are just a few things off the top of my head that describe this awesome kid. The list is ever-changing.  Bad luck? I don't think so.  Although Hannah's teacher apologized to her, I really wanted her to apologize to the entire class for making such a horrible comment that may stick in the minds of kids who may not know any better. But Maddie told me to let it go, and Hannah was mortified at the thought. I still may, but I might not. I haven't decided.  All I know for sure is I get to live every day of my life with this boy who has changed me forever. The last thing I said to Hannah's teacher was "the best luck I've ever had was the day Nate was born."
This kid....yeah....he's the end of the rainbow.

Monday, March 03, 2014

Happy Birthday

This is the first time Andrew has been away from home for his birthday...and I miss him!
Happy 19th birthday!

Friday, November 01, 2013

Just a day ...

October 30, 2013.
This morning I had to go to LaForce hardware to pick up master keys for one of my properties. That business is right next door to the Boys and Girls Club on Oneida St. That's where Andrew used to have basketball practice last year, and it hit me really hard because I miss him so much. I Remember dropping him off or picking him up throughout the basketball season and how much fun it was just having in the car with me. It's funny how something and come out the blue right at you unexpectedly. It makes me love this town because this is where my memories are. So I thought I grabbed my phone and make some notes so I could blog again more frequently like I've been telling myself every day that I should do. Days go by and I forget the little things that make my life so full of joy. I don't want to forget those times, like today. Even though it was a hard memory, it's still brings joy to me because it reminds me of someone that I love very much. So like I said, I grab my phone and open up my notes app so I can write it down, in the first note that opens up is in his graduation party. How funny is that.

I have been thinking about Andrew this morning anyway, because he called me yesterday to tell me that his charger for his Mac didn't work anymore and he needed a new one. I was making a mental note to text James to see if he knew what kind it was so we could order new one for him.
I am reminded how the ins and outs of life weave a beautiful tapestry.

This morning when I was getting Nate ready for school, he was sitting on the couch and I was putting on his socks, orthotics and shoes. (He's wearing those cool Jordan high-tops!) 

Anyway, before I put his socks on I grab his little feet and rub them and rub his ankles and kisses all of his toes and I think, "I know I did this with my other kids!" 
It's just so hard to remember them being that little. But I know I did, because I can remember saying some of the same things to them that I say to Nate. So I just want to say it officially right here and right now....Natie you have the cutest little baby feet and I never miss an opportunity to kiss them and kiss you. Every chance I get, little boy, I kiss your face your neck your head and your feet. I love you. I love you. I love you. I love you like I love Andrew, like I love Hannah, like I love Maddie....I just didn't write it down back then, and I should have.

Thursday, September 19, 2013

Whilst I was in the dressing room...

...and this....

....this too.

Just screwin' around...

This was happening.

Wednesday, September 18, 2013

Lunch for breakfast, breakfast for lunch

I was making Nate's sandwich for lunch and he says, "no mom. Hot lunch" And I looked at his lunch calendar and saw that it was going to be pancakes and eggs and I asked him, "do you want pancakes and eggs for lunch? There's pudding for dessert...!"  

he said yes! to that so I'm like ok, your sandwich for breakfast then. 
He's like, alright so he grabs his fishing pics from yesterday...

I know, right?!?

The he says, "I'm done. Here ya go."

LoL! Here ya go?!

Monday, September 02, 2013

We finally got to go to the Bruette cabin!! Spending the holiday with Becky, Tim, Tony and Karol was amazing. I loved every minute. Even the outhouse.

Wednesday, August 28, 2013

Saying "so long"

Andrew texted me a few minutes after we said goodbye. He said, "thank you for everything ❤"
I miss him already.


The campus is so beautiful!!!