Thursday, August 24, 2017

Spinraza...round 2!

It's been 2 weeks since Nate's first dose of the new drug Spinraza.  So now we're back and ready for loading dose #2!
Dr. Dad having fun with his patient while waiting for the real doc...Nate's neurologist Dr. Harmelink.
...labs are first, and he gets several vials of blood drawn. He is always so brave.
after leaving neurology and en route to radiology, Maddie and I may have stopped at the gift shop for reinforcements. 
while we waited for Nate's next appointment, the marketing peeps from the hospital asked me if they could use the photo I posted of Nate from his first visit two weeks ago. 
I'm always super happy to share Nate's story!
(You can check out the post on the Children's Hospital of Wisconsin's FB page!)
we were happy to see familiar faces when it came time for Nate's treatment.  Dr. Fons, the anesthesiologist, felt really confident that Nate could have the proceedure without being sedated this time....because Nate is such a super-awesome patient! (mom's paraphrasing) 
He promised to be at the ready if Nate needed anything.

so then off he went with Heather to get his second dose! 
recovery cuddles with those amazing heated blankets!! He did perfectly perfect without sedation. 
...then FINALLY..
Chick 'a lay.  
He'd been talking about it for hours. 
We should probably teach him to say the name correctly, but it sounds so cute when he says it so... Chick 'a lay it is, little man. 
We love you so much!


  1. Haha, chick o'lay works for me too. Love ya Nate!

  2. Sounds good. Happy for all of you! He is a trooper!

  3. Thanks for all the updates! ❤️ Boo!